Prepping for an Infusion...There is only so much information I can absorb at a new medication teach. Most of the time, these meeting type-situations occur after spending hours on whatever floor you are...Reactions0reactionsComments3 comments
The Fallible Caregiver Series: Facing Reality With Her...About 4 years ago, I felt like God spoke to me. No, not an audible voice or a vision. Nothing like that. It felt like more of an impression and...Reactions0reactionsComments1 comments
What's on your bucket list? ...Writing a bucket list is something that many people have done throughout their lives. Do you have one? Did you have one before you were diagnosed with metastatic breast cancer?...Reactions0reactionsComments9 repliesCommunity
Author Q&A: From Whispers to Shouts: The Ways We Talk About Cancer...As a breast cancer patient and advocate, a former oncologist and a journalist, Dr. Elaine Schattner was well placed to write the history of cancer from the times of very...Reactions0reactionsComments1 comments
Chemo Side Effects: Bleeding, Bruising, Runny Nose and Sleep Issues...Let’s just jump right into it here. I want to talk about a few chemo side effects I regularly experience and some of the ways I’ve learned to find relief...Reactions0reactionsComments5 comments
What has your experience with Zometa been like? ...What has been your experience Zometa infusions? Tips for others?...Reactions0reactionsComments4 repliesTreatment
Genetic Testing and Receiving Counseling from Your Healthcare Team...Janice Cowden is a passionate patient advocate living with metastatic triple-negative breast cancer since 2016. Janice feels very fortunate to have No Evidence of Disease (NED) after having a complete...Reactions0reactionsComments2 comments
I Don't Do "What Ifs"...I was diagnosed with stage IIIA (3A) cancer in 2020. I had surgery in January of 2021. I completed 20 cycles of chemo; 8 cycles of doxorubicin (Adriamycin) and 12...Reactions0reactionsComments2 comments
Have you sought out a second opinion?...If you have, what was your experience? What were the reasons behind this choice? Do you have any tips or advice for someone looking for one?...Reactions0reactionsComments0 repliesAdvocacyTips & Advice
When a Caregiver's Work is Done...I hear the car doors close out in the driveway and on the street. It's finally quiet in the house, except for the acoustic guitar music playing from the stereo...Reactions0reactionsComments0 comments
Snapshots...As many of us do I suffer from a very short attention span. Life can pass quickly and with a partner living with advanced breast cancer every memory seems extra...Reactions0reactionsComments1 comments
I Feel Guilty...I'm not sure if "guilt" for still being here is the right word I would use. I feel guilty because I get jealous of people that get to ring the...Reactions0reactionsComments5 replies
Community Member Question: Please tell me what might be ahead of me. ...A community member recently reached out and asked... Please tell me what might be ahead of me. People ask what stage and I was told depending on size and so...Reactions0reactionsComments2 repliesAnxietyDiagnosisTips & Advice
Accepting the Skin I'm In...I had a preconceived belief that people living with cancer were thin and frail in appearance; they looked sick. Most understand that chemotherapy can be brutal. It makes people sick...Reactions0reactionsComments1 comments
Have You Experienced Cancer Ghosting?...Cheryl experienced ghosting, especially toward the end of her life. Travel because a challenge because of the pain in her back (mets on some ribs, her spine, and her right...Reactions0reactionsComments11 repliesCopingTips & AdviceFriends & Family
ASCITES...Hi all Thank you for taking the time to read my question. My best friend had breast cancer lobular 10 years ago, 5 years ago it went into her peritoneal...Reactions0reactionsComments1 replies
Having anxiety about asking your doctor questions ...Do you ever feel anxious about asking your healthcare professionals questions that you may feel are silly? Has your doctor ever laughed at your questions or made you feel that...Reactions0reactionsComments0 repliesAnxietyHealthcare Team
Unusual areas for progression ...The four main areas breast cancer invades are breast, bones, liver, brain and lungs. Although rare it can move to other organs and areas. Has your cancer progressed to an...Reactions0reactionsComments3 replies
Cancer Ghosting: Navigating the Loss of Relationships...It's a topic that isn't often talked about, but it's something that many cancer patients experience: Cancer Ghosting. This is when friends, family, or loved ones become distant or cut...Reactions0reactionsComments2 comments
Do Not Be Scared To Ask Your Healthcare Team Questions...Recently I have been having an increased amount of pain in my knee, and it's been weighing on my mind. I would ask myself, "Can cancer go to the knee?"...Reactions0reactionsComments4 comments