ATM Mutation, Part 4 - My Dad...Cancer affects the entire family in a variety of ways. Cancer isn't a new subject in my family, but discovering that many of us carry the ATM germline mutation in the...Reactions0reactionsComments0 comments
Finding the Right Care Team for Me...So hard to believe that it will be one year since my diagnosis on April 24, 2018. If you asked me what I would have done differently, I would say...Reactions0reactionsComments0 comments
Is a Clinical Trial Right for Me? 5 Questions to Help You Decide...Making decisions can be tough, especially when they relate to your health! One decision you may face is whether or not participating in a clinical trial is right for you...Reactions0reactionsComments0 comments
Beauty and advanced breast cancer...The side effects of treatment for advanced breast cancer can leave many patients with a negative body image and low self-esteem. From losing a breast to hair loss, many women...Reactions0reactionsComments1 repliesTips & Advice
I Want a Cure, But I'll Settle for Chronic...My first dose of reality came when I was diagnosed with de novo metastatic breast cancer (MBC). That was the day the pink-colored glasses came off, and I learned that...Reactions0reactionsComments0 comments
Sarah Kelly...Sarah was previously a health leader on AdvancedBreastCancer.net. Sarah Kelly is a stage 3, Triple Negative Breast Cancer. Sarah was 36 years old had recently gotten married, had a 14-month-old...
Will I Need to Pay to Be in a Clinical Trial?...Clinical trials can provide an opportunity for patients to receive the latest treatment, provide a new treatment option for those whose previous treatment didn’t work, and allow patients to be...Reactions0reactionsComments0 comments
Five Helpful Tips for Caregivers...Receiving a diagnosis of advanced breast cancer can be a life-altering experience, not only for the person diagnosed but also for the spouse, child, parent or friend who becomes the...Reactions0reactionsComments0 comments
Does faith or spirituality help you cope with your diagnosis?...Many people in our community have mentioned that their faith has played a major role in coping with their diagnosis. Has faith or spirituality played a role in your coping?...Reactions0reactionsComments23 repliesCoping
Where I Find Myself...This is not what I wanted, but this is what I got. I am new to the metastatic breast cancer world (diagnosed on April 24, 2018). Since my diagnosis, there...Reactions0reactionsComments0 comments
Have you tried cold cap therapy during chemotherapy?...We recently asked our Facebook community about their experience with cold capping. Here is what they had to say. Have you considered this particular type of therapy? "My oncologist recommended...Reactions0reactionsComments0 replies
Living With: An Interview with Advocate Susan Rahn...I recently had the opportunity to interview AdvancedBreastCancer.net advocate Susan Rahn for the Health Union podcast, Living With. Since her diagnosis of metastatic breast cancer (MBC) in 2013, Susan has...Reactions0reactionsComments2 comments
Emily Garnett...We are heartbroken to share that on Sunday, March 29, 2020, Emily Garnett passed away. Emily was a valued member of the AdvancedBreastCancer.net community and an incredible advocate for metastatic...
Do you get "scanxiety?"...Ever heard of scanxiety? It describes the fear and anxiety that can set in leading up to an imaging scan, during the scan, and while waiting for results. Diagnostic and...Reactions0reactionsComments14 repliesAnxietyTreatment
The Importance of Knowing Your Sub-Type...There is important information about every individual person’s cancer that doctors need to know to recommend the most effective treatment. The type refers to the specific kind of breast tissue...Reactions0reactionsComments0 comments
Ask and You Might Receive: Financial Assistance for Testing & Medication Might Be Easier Than You Think...The Guardant Health Test, (genomic testing) is a simple blood test that comes with a high price tag. Some of the expense was covered by insurance, but for me, it...Reactions0reactionsComments0 comments
April Doyle...We are heartbroken to share that on Saturday, September 12th, 2020, April Doyle passed away. April was a valued member of the AdvancedBreastCancer.net community and an incredible advocate for metastatic...
TK Sellman...TK was previously a health leader on AdvancedBreastCancer.net. TK Sellman, RPSGT CCSH is a career journalist (Columbia Chicago, ’90). She was diagnosed with idiopathic hypersomnia in 2010, which inspired her...
Just diagnosed...In October 2018, I went to the doctor for headaches and dizziness. He sent me for a MRI of the brain. Luckily he did this because they went too far...Reactions0reactionsComments5 comments
What Is Ontruzant® (trastuzumab-dttb)?...Ontruzant® (trastuzumab-dttb) is used to treat certain people with metastatic breast cancer that is positive for the human epidermal growth factor receptor 2 (HER2+). It is used for HER2+ metastatic...