Long Term Survivors?
Hola —- I just rounded 3 years of stability, NED, with 3week Ibrance and monthly Faslodex.
Please, please tell me there are folks out there who’ve been on these meds longer with NED results …
Are ya out there?
I’m almost 3 years pretty dang stable. I hope you find someone to connect with, friend!
-Steph (team member)On the same treatment. Recently started to have some more pain in lower back region that’s where my biggest shot of lessons are. Headed for an mri this month to see if anything is growing but for the most part I’ve been the same since I was diagnosed du novo in March of 21
That is a pretty good amount of time with nothing lighting up, friend! I hope that the pain in your lower back can be helped. Sending you love for your MRI day!
-Steph (team member)
just thinking of you and wanted to check in to see how you are doing this week? Hugs, Jessica, Team Member
I have been on ibrance and fulvestrant since Feb 2020. Getting close to the 4yr mark. Iam also NED. Im glad to read that you are too 🤗
..... THANKS for this ..... WHOOOOO HOOOOO ... Reading this made me sooooooo HAPPY!! The shots have given me "Rump Humps" - Has this been an issue for you?
Yes. I have "rump humps" they give me the shot around the same place but they try to move alittle to the left or right lol i look at it this way.... If it's working for us.... I don't care if they shoot me in the foot with fulvestrant hahaha 🤣
Only side effects I really experience are hot flashes... Occasional mouth sores (that clear up well with peridex) and I'm tired now and then.
