How do you cope with SCANXIETY?! ...Hi friends! Me again 👋🏻 I have scans tomorrow (yay) and I was wondering, how do y’all cope with scanxiety? I know it’s a pretty common thing, because scans are...Reactions0reactionsComments0 repliesTreatmentTips & AdviceAnxiety
Traveling with Advanced Breast Cancer...I used to love to travel pre-cancer, but I couldn't help but feel anxious about being away from my safe space, my home, for too long. Now that I have...Reactions0reactionsComments12 comments
The Physical Demands of Caregiving...Most caregivers, myself included, focus on how our experience affects us emotionally. I'm going to step aside for this article and speak with you about the physical demands of caregiving...Reactions0reactionsComments0 comments
How has traveling changed for you? ...How has travel changed for you since being diagnosed with advanced breast cancer? What tips can you offer others?...Reactions0reactionsComments10 replies
What to do with extra medicine?...My medicine dosage chnged and when it did I ended up with extra, unopened medicine. These meds (tablets) are INsAnely expensive .... Trying to figure out what, if anything, I...Reactions0reactionsComments13 repliesTreatmentChemotherapy
Why Genetic Testing Can Be Important...Editor's note: Kate is a patient-centered health advocate and not a medical professional. Although she likes to think of herself as a professional patient living with Stage IV Breast Cancer...Reactions0reactionsComments0 comments
My teenage daughter seems to lack empathy for me these days; any advice? ...I have been feeling really defeated with one of my teens lately. She has only known me to have cancer basically her whole life. Lately, she just seems to lack...Reactions0reactionsComments2 repliesFriends & Family
Have you had Genetics testing done? What was your experience? ...Hey friends, I have a denovo p53 genetic mutation, also known as Li-Fraumeni Syndrome. Has anyone else tested positive for a genetic mutation? My son recently was tested for over...Reactions0reactionsComments2 replies
The Fallible Caregiver Series: Don’t Let Cancer Steal Your Romance...Eight months into our marriage, cancer stole from us the ability to have sex (i.e., intercourse). As the special intimacy of intercourse disappeared from our marriage, other romantic practices and...Reactions0reactionsComments1 comments
Sick, Yet Not Sick...So you’ve been diagnosed with mets. Now what? At first, it’s terrifying (and honestly, it might still be terrifying). It’s all so new, and scary, and there are so many...Reactions0reactionsComments0 comments
Cancer Doesn't Come With a Gift Basket...As a kid I always imagined growing old with my partner, watching them age, seeing who we become with each new decade of life, and falling in love over and...Reactions0reactionsComments3 comments
Digital Planning - My New Obsession...Back when the dinosaurs roamed, and before breast cancer, I had a job. It was a demanding career that had me going in a million directions. Many times during the...Reactions0reactionsComments1 comments
What is your experience with Ibrance? ...Hi friends! I am currently on Ibrance as my line of treatment. I thought I would start a thread talking about it here if anyone wants to chat. I’ve been...Reactions0reactionsComments17 repliesTips & AdviceChemotherapySide EffectsTreatment
Chemo Side Effects: Upset Stomach and Muscle Pain...Since I last wrote on the side effects of chemotherapy, I’ve had chemo twice. For almost the last two years I’ve been on Enhertu. I think it’s my 5th (or...Reactions0reactionsComments8 comments
Keeping a Positive Mindset and Outlook...When you have a diagnosis that is described as terminal, incurable, deadly, and sad, it can be hard to have a positive outlook on life. Your doctor may read out...Reactions0reactionsComments2 comments
Which cancer respite care organizations have you worked with?...Respite care organizations can provide those living with cancer (and their families) much-needed time together to create memories… In her article, "What Advanced Breast Cancer Steals from Me," Kate shares...Reactions0reactionsComments0 replies
Capivasertib Shown to Delay Disease Progression...There is good news for people living with hormone receptor (HR)-positive, HER-2 negative breast cancer that has not responded to aromatase inhibitors. A new drug called capivasertib, combined with the...Reactions0reactionsComments0 comments
Dealing with Burnout When You Can't Get Away...As a caregiver, it's all too easy to neglect ourselves. Our life changes radically when our spouse or other relative receives a cancer diagnosis, especially if we provide the only...Reactions0reactionsComments0 comments
Medical Gaslighting and How to Advocate for Yourself...The term "gaslighting" has been around since the 1930s. It has been defined as the act of manipulating someone in a way that can make them doubt themselves and their...Reactions0reactionsComments0 comments
Do you feel that your medical team listens to and understands you? ...With doctors' appointments being such a critical component of your lives and treatment plans, it is vital to have a medical team that you feel hears and understands you. What...Reactions0reactionsComments8 repliesAdvocacyTips & AdviceHealthcare Team
