What NOT to Say to Someone with MBC

Hi & - I know you're not alone in your experiences with others. Although you aren't obligated to give a response or acknowledge their comments, what about something gentle but to the point; "While I appreciate your optimism, this isn't a cold or something I'm going to beat or feel better from," and you could take a moment to help educate the person on your condition and where you stand with it. Or, if you'd rather keep it short and sweet, you could say something like, "I know you're trying to be positive, and I appreciate it." As said, most have good intentions but don't know the specifics, so it's an excellent chance to acknowledge their sentiment while expressing your reality. Sending you both support and strength every step of the way! Hugs, -Beth (Team Member)

I don't think this is petty at all, Burner. I think you're incredibly valid in everything you said. I know people mean well when they say things like that, but sometimes, it means so much more for people to just say nothing and listen to what someone is telling them. I think what you said is so absolutely true and I'm really glad you shared your point of view. Thank you!!! ❤️

(((Hugs))) , it's not petty at all, it's honest, it's how you feel. I don't think people mean to sound glib, but these are honest conversations that we have not been taught to have. We are taught to "look on the bright side", and leave people feeling better, and often times, we are poorly equipped to do that, to even know how.

How are you feeling today? - Warmly, Donna (Team Member)

I want to address your first statement but first, I have to admit, I chuckled a little bit when I read "that just frosts my cookies." I've never heard that before, and I immediately loved it! What a charming way to say that something really grinds your gears. I'm totally going to borrow that phrase if you don't mind! Lol, thank you for sharing that! And thank you for sharing your first comment about "you are the healthiest looking sick person I know." Wow. That's such a hurtful and dismissive thing to say to someone. I don't even know what I would say to someone if I heard that. Was this something that was said to you? Did you have a response for them? ❤️

I can completely understand this and would infuriate me as well! It is so unfortunate that others can say such dismissive comments. I truly hope you know our community gets and we are here for you. How are you doing this week? Hope it has been kind. -Jessica (Team Member)