Taste and Smell ChangesPeople often experience taste and smell changes when they have advanced breast cancer or when they are getting chemotherapy or radiation therapy to treat cancer. The cancer treatments themselves cause...Reactions0reactionsComments0 comments
Community Shares: The Test that Detected My Breast CancerEveryone who is dealing with advanced breast cancer has their own experience, from the moment of detection to choosing the right course of treatment. Before or during diagnosis, there are...Reactions0reactionsComments0 comments
Troubleshooting Symptoms - PainDisclaimer: I'm not a doctor or any sort of medical professional. All of my comments and suggestions in this post (or any other) are based on my own experiences or my...Reactions0reactionsComments1 comments
A Nurse’s Perspective on Ringing the Chemo BellI remember when the "chemo bell” was donated to the treatment room where I am an infusion nurse. The local news came and did a clip in our treatment room...Reactions0reactionsComments21 comments
Faith, Spirituality, and Advanced Breast CancerWhen it comes to living with advanced breast cancer, people rely on different things to help guide them through their daily struggles. Some people in the community have mentioned that...Reactions0reactionsComments0 comments
Working to Replace OurselvesFor the second year, I was able to attend the Stampede, which is an effort by Metavivor towards legislative advocacy, and the Die-In, which is a form of a sit-in...Reactions0reactionsComments0 comments
Breast Cancer Screenings and Mental HealthPeople with serious mental illness often die 15-20 years before people without serious mental illness. Some types of serious mental illness include bipolar disorder, major depressive disorder, and schizophrenia. The...Reactions0reactionsComments0 comments
Community Shares: The Benefits of the Advanced Breast Cancer Online CommunityThe power of community should never be underestimated. When it comes to living with advanced breast cancer, someone may feel alone when first receiving news of the diagnosis. Perhaps you...Reactions0reactionsComments2 comments
Piqray - My New Treatment OptionIn May of 2019, Piqray (aka Alpelisib) was fast-tracked by the FDA and in August of 2019, I was prescribed it, after experiencing a mild progression after two (2) years...Reactions0reactionsComments0 comments
What is Survivor's Guilt and How Can I Manage?There is a lot of focus these days on surviving breast cancer. And many people do get cured. If your cancer is found early and hasn’t spread, you have a...Reactions0reactionsComments1 comments
I Am More Than My Diagnosis: A Year in ReviewIn our Impact of Cancer Survey, we asked what terms people diagnosed with cancer preferred and disliked. The answers were all across the board, from survivor to metavivor to “just...Reactions0reactionsComments0 comments
Genetic TestingSome people may choose to have genetic testing to understand their risk of developing breast cancer especially when there is a history of breast cancer in the family. Two of...Reactions0reactionsComments0 comments
Breastless In The CityThe morning I realized that my showers would no longer be the same, I held my left breast in the palm of my hand as if it were a newborn...Reactions0reactionsComments2 comments
What is Secretory Breast Carcinoma?Secretory breast carcinoma (SBC) is a very rare form of breast cancer that tends to happen in younger people. It mainly affects girls and women. But as with other types...Reactions0reactionsComments0 comments
Remembering Rebecca Timlin-ScaleraWe are incredibly saddened to share that AdvancedBreastCancer.net team member Rebecca Timlin-Scalera passed away on December 14th, 2019. Rebecca was a mother, a wife, a daughter, a sister, an aunt...Reactions0reactionsComments0 comments
CommunityI’ve been thinking about community a lot lately. I have looked at community differently at different times in my life and, being an introvert, always with a bit of trepidation. Being...Reactions0reactionsComments0 comments
Understanding Your Pathology ReportGetting an advanced breast cancer diagnosis can be scary and surprising. The words used by your doctor may be confusing; the medical terms may not be familiar to you. To...Reactions0reactionsComments0 comments
TerminalWhen I was diagnosed with cervical cancer, I knew that I was going to be fine - sterile but fine. When I was diagnosed with mouth cancer, I knew that...Reactions0reactionsComments5 comments
Why Advocacy?I went to Washington DC for the 2019 Metavivor Stampede, the METup Die in, and for two readings of the play, IV: A Documentary Intervention. My husband and I flew to...Reactions0reactionsComments0 comments
TNBC Series – A Diagnosis InterviewWe wanted to share with you a personal and in-depth interview with two of our Patient Leaders, Sarah Kelly and Melissa Berry. By sharing their stories, we hope to continue...Reactions0reactionsComments2 comments