Summertime with MBC and COVID-19It’s officially summertime! What does that look like for us metastatic folk in the age of COVID-19? The same as it does for anyone else, but perhaps with a few...Reactions0reactionsComments0 comments
ASCO Guidelines for Men with Breast CancerAlthough rare, breast cancer does occur in men. Male breast cancer makes up less than 1 percent of all breast cancers diagnosed in the United States. For men, the lifetime...Reactions0reactionsComments0 comments
COVID-19 & MBC: Our Concerns are Different than Healthy PeopleI've been living with stage IV metastatic breast cancer (MBC) for three (3) years and I've been immunocompromised for all of that time in one way or another. I'm fully...Reactions0reactionsComments3 comments
Bisphosphonate Induced Osteonecrosis of the Jaw (BIONJ)Did you cringe a little before you opened this post? I would have before my diagnosis of bisphosphonate induced osteonecrosis of the jaw (BIONJ) and I've been contacted by quite...Reactions0reactionsComments2 comments
Grief in the Digital Era: Mourning A Virtual FriendMany who have experienced it, say that the grief felt when we lose a loved one who we’ve lived with, or met many times, is different from that experienced when...Reactions0reactionsComments0 comments
TriggersI’m awakened by the soft melody of "Killing Me Softly" inside my waking nightmare. Not the original version by Roberta Flack but by a version that I’ve never heard while...Reactions0reactionsComments0 comments
Life, BC (Before Cancer): Remembering Your Former SelfOne day everything is normal, and the next your whole world gets flipped on its head. Life becomes separated into two distinct times; before and after. Amid the chaos and...Reactions0reactionsComments0 comments
Metastatic Mysteries: Losing and Finding My VoiceIn November 2018, I was feeling weary and exhilarated all at once. I had just traveled the country for several weeks of in-home ethnographies. I loved getting to know the...Reactions0reactionsComments0 comments
The Funniest Things?An account I follow on Instagram (@humanbeatscancer) recently asked: "What is the funniest misconception you had about cancer?" Many of the responses were also about the misconceptions about the treatment...Reactions0reactionsComments2 comments
Testing Family Members for the BRCA GenesThe BRCA genes made world headlines in 2013 when Angelina Jolie underwent a double mastectomy to reduce her risk of developing breast cancer following a BRCA1 gene mutation diagnosis. Ms...Reactions0reactionsComments0 comments
Single Parenting MBC Series: The Dating EditionBeing a single parent can be stressful and challenging. Now add in managing metastatic breast cancer to the responsibilities of parenting. Two of our AdvancedBreastCancer.net advocates share their experiences as...Reactions0reactionsComments2 comments
Race and Cancer, Part 1For most of my life, I lived around other WASPS (White Anglo-Saxon Protestants) in the Midwest. We did live in a few other places (Albuquerque and Maryland) but what I remember...Reactions0reactionsComments0 comments
What is Inflammatory Breast Cancer?Inflammatory breast cancer (IBC) is rare and aggressive. The symptoms of IBC are different from most other types of breast cancer. There is usually no lump that forms. Instead, breast...Reactions0reactionsComments0 comments
Benefits of JournalingLiving with advanced breast cancer can raise many different emotions and feelings as you process a diagnosis, go through treatments, and wrestle with thoughts about mortality. It can feel overwhelming...Reactions0reactionsComments0 comments
Electronic Resources and Connection During COVID-19My new friend, Marianne Sarcich, has spent a great deal of effort and time putting together an amazing list of resources for anyone who has cancer and updates her list...Reactions0reactionsComments0 comments
That Port Life: Embracing My Chemo Port“Is that a...hicky?”, my friend asked on a girl’s night, eyes fixed on my chemo port. “Nope”, I replied, annoyed. “That’s my port.” “Port?”, she asked, puzzled. “A port for...Reactions0reactionsComments0 comments
Recruiting Scientists to Your TeamI count several scientists as part of my team. Frankly, I never thought that would be the case and as I was explaining how my medical oncologist and I lean on...Reactions0reactionsComments0 comments
COVID-19 Updates, July 16: Updates on People at Risk, Testing, Reopening, and a VaccineEven after months of navigating life in the COVID-19 era, keeping up with new information and news can be overwhelming. Below are some of the latest developments surrounding COVID-19 for...Reactions0reactionsComments0 comments
Community Shares: Advanced Breast Cancer SubtypesAdvanced breast cancer is complicated. Not only is it diagnosed by stages, but it has many subsets that tend to correspond to how well the cancer will respond to treatment...Reactions0reactionsComments0 comments
Understanding Why The Caged Bird SingsGrowing up I always loved, "I Know Why the Caged Bird Sings," by Maya Angelou. It resonated with me on levels that I didn’t even understand. I now understand the...Reactions0reactionsComments0 comments