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What frustrating side effect you are currently experiencing as a result of your treatment?

Living with Metastatic Breast Cancer is challenging, both emotionally and physically. Treatments used to slow or stop cancer’s growth can cause unwanted side effects and create additional strain on a person’s body and emotions. We asked our Facebook community what their most frustrating side effects are. Read below to see what they had to say and tell us what side effects are frustrating YOU these days!

- Gi issues
- Fatigue beyond Fatigue! Oh, did I say Fatigue?
- Vomiting and peeing at the same time UGG!!
- Neuropathy! In my feet which forces me to be really careful when I walk, even with my walker. And now my fingertips feel strange (numb), interfering with my crochet hobby.
- change in taste of food - I miss my coffee
- Pain and stiffness in my hands
- Chemo Fog, and fatigue.
- Pain… every stink’n day.

  1. Lately my most frustrating side effect has been pain in my joints. More specifically my ankles and feet. I am taking Kisqali (Ribociclib) and Leztrozole (Femara) but the aren't sure if it is neuropathy from a previous chemotherapy or exactly what is going on. I started physical therapy this week and I am working on desensitization with my physical therapist. The different textures should start to help along with other exercises. Just curious if anyone else is experiencing such pain?

    I included a photos of the different textures, pinto beans, pop corn kernels and rice. It's actually quite therapeutic. Let's see if it helps. *Fingers Crossed* Desensitization pods

    1. Hey @Mallory Royal. I have seen many people throughout the community mention that they are struggling with joint pain. Here is an article that one of our advocates Abigail shared on ways that she combats the pain https://advancedbreastcancer.net/living/troubleshooting-symptoms-pain . I have never seen the texture exercise. Keep us posted on if you find helpful. Shayla (AdvancedBreastCancer.net Team Member)

  2. My most frustrating SE are the very low blood counts. Because I also have asthma, lung issues, am older….this really limits my ability to do a lot of things. I would love to go out to eat again.

    1. I can hear how frustrating that must be for you. Getting out and changing scenery can do so much good for us. Winter months (if you live in a cold area) can put an extra damper on that! One of our contributors wrote an article about "winter blues" and suggested having an indoor picnic with some loved ones. While not the same as going out - it could be a fun way to spice up a day and enjoy a meal from a different vantage point 😄 ( https://advancedbreastcancer.net/living/beating-winter-blues ). I'd love to hear what suggestions others might have! Warmly, Patty

    2. I fully agree with you here, friend. The low blood counts are a tough thing to deal with, especially with all the illnesses going around right now! Going out to eat has to be one of the most simplest delights that a lot of able bodied folks take advantage of. My wife and I love to support local spots by ordering take out, and watching one of our favorite guilty pleasures on Netflix (right now, it’s Ginny and Georgia, and The Circle). I know it’s not the same, but it’s still cozy vibes and yummy food!


      I hope that you can find something that lives up to the joy you find in that activity. If the weather is good where you are, or when it gets good, a lot of restaurants have perfected the outdoor eating space. With mindful precautions and hand sanitizing, it could work out for you!


      Sending you lots of love!

  3. Nausea

    1. Many here can definitely relate to the nausea that you experience. Is there anything that works well for you? Sharing an article here with a few suggestions - is there anything you'd add to the list? https://advancedbreastcancer.net/living/nausea Warmly, Patty, Team Member

  4. Constipation

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