Newly Diagnosed with TNBC: Essential Advice from Advocates

In this Ask-the-Advocate feature, breast cancer advocates Sarah Kelly and Melissa Berry share six essential pieces of advice for anyone navigating a new diagnosis of triple-negative breast cancer (TNBC).

What key advice would you offer to someone newly diagnosed with TNBC?

Sarah

Seek a second opinion

Consulting multiple specialists helps confirm your treatment plan and ensures your medical team is aligned. If recommendations differ, taking the time to understand why will give you greater confidence in your care decisions.

Take detailed notes and bring support

Bring a notebook to every appointment to write down key details, or ask a trusted friend or family member to accompany you. The initial stage of a diagnosis can feel overwhelming, making it difficult to retain every piece of medical information on your own.

Lean on support systems when you're ready

TNBC treatment is an emotional journey, making self-care essential. Connecting with others through dedicated support groups offers deep comfort, though it is fine to wait until you feel ready. Joining a group after completing primary treatment provided a safe space where I felt truly understood by women on the exact same path.

I remember my sister, Leah, telling me I should go to a support group. Going to a support group and listening to other people talk about their diagnosis, was a really scary thought for me. Focusing on myself, my new baby, and my 14-month-old was enough, and the idea of joining a support group was not something that I could wrap my head around being part of initially. Once I completed my treatment, about a year after I was diagnosed, I was ready to start talking.

I was listening to women that were going through exactly what I had gone through, and no one else really understood what I had gone through before that. I think you have to do it on your own time when you're ready to accept what you're hearing, and when it's not as scary for you. I think a group or whatever kind of therapy or support you find where you can open your heart is something you should consider being a part of.

Melissa

Avoid "Doctor Google"

It is tempting to research prognosis online, but doing so often leads to unnecessary fear. Every medical history and diagnosis is unique, making your oncology team your best source of accurate information.

Prioritize self-care and open communication

Give yourself permission to rest, and practice patience with your body. Clear communication with your family, employer, and friends regarding your limitations helps set expectations and ensures you receive the support you need.

Connect with a patient community

Navigating TNBC can feel isolating. Connecting with patient communities—whether through local support groups, online networks, or advocacy conferences—is a powerful way to build friendships and share resources with people who understand your experience.