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Hello, my name is Vivian Brown. I wad diagnosed November 19, 2019. My primary care physician recommended my surgeon and oncologist. I met them within the first two weeks of my diagnosis. My mastectomy was scheduled for 12/31/2019. I came through the surgery without difficulty. I learned about my drains and how to measure fluid. I went back to my surgeons office and she drained a great deal of fluid. I came back the following week and more fluid was drained. I met with my oncologist in late January of 2020. I started chemotherapy on Valentine's day. I never thought of cold caps, because I didn't know about it. I lost my hair. My great grandchildren thought that that was cool. They didn't understand what I was going through. They told me that they rubbed my head for good luck.I suffered from extreme fatigue and weight loss. I dropped 16 pounds the first 3 weeks of chemotherapy. I developed tingling in my fingers and toes; and had to skip a treatment. I finished chemotherapy in July. Two days after Independence day. My appointment with the radiation oncologist was in late July.I started radiation in August and finished 3 days after labor day. I went through radiation without any problems. My problems started when my oncologist retired 12/31/2020. He left me several names and facilities. It took three months to get an appointment and then after my first visit with my oncologist; she informed me that she was leaving to head up a clinical trial. I therefore had to find another oncologist and facility as the hospital I was being treated in wad closing. My biggest problems were with the maintenance therapy and serious side effects. I'm now on a different medication, the third one and I'm living with the side effects. They're not ad bad as with the first two medications. My biggest problem is fatigue. I empty trash come back in and sleep for several hours. I can walk 3 houses down and come back to my home with fatigue. I thought that I would have bounced back from the fatigue, but its ongoing and frustrating.
Hi Vivian (
I'm on a different maintenance medication. Exemastane I take it daily. Some of the side effects that I have are hoarseness, and weight gain. I still have fatigue. Now I can grocery shop without using a motorized cart. I miss my walking. I'm use to walking 5 miles daily and now I can't go 100 feet, without fatigue. I've picked up weight. I'm at 215 lbs and when I started Chemo I wad 169 pounds. My oldest granddaughter is a hospice nurse, she checks on me and my daughter takes me shopping mainly groceries. I have no taste for red meats. I'm basically eating fish, chicken, broiled, baked or fried. If I fry my food I use rice flour. I'm not using salt, just herbs and garlic. I'm not using instant potatoes because of salt content and I've changed to non salted butter.I'm exercising with a hula hoop and stationary bike. I can hula hoop everyday for 10 minutes. The exercise bicycle is more of a challenge and I'm on it for 10 minutes 2 to 3 times per week.I'm told recovery takes time. My question how much time?
Best, Mallory (Team Member)