Skip to Accessibility MenuSkip to LoginSkip to ContentSkip to Footer

The ConfidentPatient:A Doctor Discussion Guidefor MBC Care

Understanding next steps

Whether you’re newly diagnosed or have been living with metastatic breast cancer for some time, you may find yourself quietly asking, “What now?” Those moments can bring up so much – fear, worry, questions you weren’t expecting – all mixed in with everything else you’re carrying.

It can feel like a lot to hold on your own. Talking openly with your care team can help you get a better sense of what’s happening and figure out the next steps that are right for you.

Before your appointment

To make the most of your visit, gather anything that can help your oncologist understand the full picture. Write down changes in energy, routine, or stress levels. Include a list of medications, supplements, and recent records or scans. Many people use a binder to stay organized.

These conversations can bring a ton of information at once. If comfortable, have someone come with you to take notes and help review what was discussed – or see if you can record the visit. And if something isn’t clear, it’s always okay to ask for it in plain language.

Questions for your care team

Doctor visits can sometimes leave you with more questions than answers. Having a few prepared can help you stay focused on what you want to understand: how your cancer is changing, how treatment is working, and what might help you feel better supported along the way.

Use the questions below to guide the conversation toward what matters most to you – and to help your care team understand what’s been changing and where a little extra support could make a difference.

    Where you are today
  • Can we go over my recent scans or bloodwork together?
  • Has anything changed in the areas where the cancer has spread?
  • Should we repeat any tests – like hormone receptor or HER2 testing – to see if anything has changed?
  • Are there specific signs you’re watching closely right now?

    Treatment
  • What are the goals of treatment at this stage?
  • How do we evaluate whether my cancer is responding to treatment?
  • What kinds of tests or scans will we use – and how often?
  • How will I know when it’s time to consider switching treatments?
  • If this treatment stops being effective, what options would we consider next?
  • How might different treatments affect my day-to-day independence or comfort?
  • Are there clinical trials or other approaches I should know about?

    Additional support
  • Could palliative care help me manage symptoms?
  • Are there lifestyle changes you would recommend?
  • Are there any limits on activity that I should follow?
  • Where can I find a counselor or support group?
  • What support is available for my family or caregivers?
Symptom Check-in

What’s changed for you?

Everyone’s experience with metastatic breast cancer is different. If you notice new symptoms, even ones that you might think are “no big deal,” be sure to let your care team know. Every detail helps them better understand what's going on.

In the past month, have you noticed any of the following?

☐ New or worsening pain
☐ Joint pain or cramps
☐ Shortness of breath
☐ Nausea, diarrhea, or vomiting
☐ Trouble sleeping
☐ Increased fatigue or weakness
☐ Weight loss or gain
☐ Difficulty concentrating or remembering things
☐ Feelings of anxiety, sadness, or irritability

The Check-up

Saying what’s hard to say

Some changes can be difficult to bring up, especially when you’re not sure what they mean. Here are some ways to jumpstart the conversation.

    When you talk with your oncologist, you might say:
  • “Lately I’ve been noticing ___. Could this be progression or something else?”
  • “Pain, fatigue, or stress have been making things harder for me. What can help?”
  • “I’m not sure if what I’m feeling is expected. Can we talk it through?”

What’s on your mind matters. Sharing it can help your care team show up for you in the ways you need.

Download PDF